About Me

Hi everyone! My name is Rachael. I’m 23-years-old and live in Utah with my husband (aka best friend), Jake.

Jake and I both graduated from BYU. He now works as a computer software engineer, and I work in marketing (currently part-time from home due to being ill). We love eating tacos, playing mario kart, and spending time in the mountains/outdoors.

Prior to becoming sick, I was an avid rock climber. It was my passion and I miss it everyday. Because my illness is currently preventing me from doing many of the things I love, I’m trying to find other ways to find joy and fulfillment in life. I now enjoy crocheting, writing, chatting with fellow spoonies, and cooking when I feel up to it!

Through all of this, my greatest joy and hope has come from God. I believe His joy is available to all, regardless of circumstances.

The chronic illnesses I suffer from are POTS (postural orthostatic tachycardia syndrome), intracranial hypertension, chiari malformation, celiac disease, tmjd, chronic mono, and upper airway resistance syndrome. My doctors also suspect a genetic connective tissue disorder called ehler danlos syndrome, which I’ll be properly evaluated for soon.

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